Keynote address: The Era of Personalized Cancer Medicine and whole Person Care. Keeping The Person in Personalized Medicine.

Patricia Ganz, MD

Patricia A. Ganz, MD – Los Angeles, CA USA
Distinguished Professor Health Policy & Management and Medicine
UCLA Fielding School of Public Health
David Geffen School of Medicine at UCLA
Director, Cancer Prevention & Control Research
Jonsson Comprehensive Cancer Center

A medical oncologist, has been a member of the faculty of the UCLA School of Medicine since 1978 and the UCLA School of Public Health since 1992. Since 1993 she has been the Director of Cancer Prevention and Control Research at the Jonsson Comprehensive Cancer Center. In 1999 she was awarded an American Cancer Society Clinical Research Professorship for “Enhancing Patient Outcomes across the Cancer Control Continuum.” Dr. Ganz was elected to the Institute of Medicine (IOM), National Academy of Medicine, in 2007. She served on the National Cancer Institute Board of Scientific Advisors from 2002-2007 and on the American Society of Clinical Oncology (ASCO) Board of Directors from 2003-2006. She received the American Cancer Society Medal of Honor in 2010. Dr. Ganz is a pioneer in the assessment of quality of life in cancer patients, and has focused much of her clinical and research efforts in the areas of breast cancer and its prevention. She is a clinical trialist, and has led the Behavioral and Health Outcomes committees of SWOG (1995-2000) and NSABP/NRG (2001-present), incorporating patient reported outcomes and other important outcomes into clinical trials. At the Jonsson Comprehensive Cancer Center, she leads the scientific program focused on Patients and Survivors. Her major areas of research include cancer survivorship and late effects of cancer treatment, cancer in the elderly, and quality of care for cancer patients. Dr. Ganz recently stepped down from service as Vice Chair of the IOM National Cancer Policy Forum, and Chaired the 2013 IOM consensus report entitled “Delivering High-Quality Cancer Care: Charting a New Course for a System in Crisis.”


Keynote address: Disclosing genetic cancer risk and psychosocial well being: Moving toward a person-centered communication model of cancer care.

There is a growing need to assess the impacts of cancer risk information on patients’ psychosocial well-being when communicated from both healthcare providers and genetic risk assessment websites. I present quantitative and qualitative research I have conducted on these issues, as well as some additional contemporary research of relevance to the field. In my talk, I will bring the voices of patients I have personally interviewed who have told me what they wished their healthcare providers would have said to them when disclosing their cancer risk. In addition, I will also confront the types of personalized cancer care communication which have come up in my interviews as opportunities to empower medical decision making for patients.



Sharlene Hesse-Biber, PhD – Chestnut HiIl, MA USA
Department of Sociology
Boston College
Professor of Sociology
Director of the Women’s and Gender Studies Program

Sharlene Hesse-Biber, B.A., M.A., Ph.D. University of Michigan, is Professor of Sociology and the Director of the Women’s Studies Program at Boston College in Chestnut Hill, Massachusetts. She is co-editor, with B. Johnson of The Oxford Handbook of Multi and Mixed Methods Research Inquiry (2015). Her monograph, Am I Thin Enough Yet? (Oxford, 1996), was selected as one of Choice Magazine’s best academic books for 1996. She is author of The Cult of Thinness (Oxford, 2007) and Mixed Methods Research: Merging Theory with Practice (Guilford Publications, 2010). She is the co-author of Working Women in America (Oxford, 2005) and The Practice of Qualitative Research (Sage, 2006;2011).

She is co-editor of Approaches to Qualitative Research (Oxford, 2004), Feminist Perspectives on Social Research (Oxford, 2004), Emergent Methods in Social Research (Sage, 2006) and The Handbook of Emergent Methods (Guilford, 2008). She is editor of The Handbook of Feminist Research (Sage, 2007), an AESA Critics Choice Award winner and selected one of Choice Magazine’s Outstanding Academic titles for 2007), and The Handbook of Emergent Technologies (Oxford, 2011). She most recently received a 2015 Book Award by Alpha Sigma Nu, the honor society of Jesuit colleges and universities, for her book Waiting for Cancer to Come: Genetic Testing and Women’s Medical Decision Making for Breast and Ovarian Cancer. She is co-developer of HyperRESEARCH, a software tool for analyzing qualitative data, and a transcription software tool, HyperTranscribe (www.researchware.com).



Keynote Plenary: A New Era of Care-MAID Panel


Dr. Madeline Li, MD, PhD
Associate Professor, Department of Psychiatry, University Health Network
Clinician Scientist, Department of Psychosocial Oncology and Palliative Care, Princess Margaret Hospital

Dr. Madeline Li is an associate professor in the Department of Psychiatry, University Health Network and a clinician scientist in the Department of Psychosocial Oncology and Palliative Care, Princess Margaret Hospital. She completed her MD/PhD at the Ontario Cancer Institute, followed by a residency and fellowship in psychiatric oncology at the University of Toronto. In addition to her clinical practice in cancer psychiatry, she conducts collaborative research in the areas of psychoneuroimmunology, genetics and psychosocial cancer research. She is the developer and physician lead of the Distress Assessment and Response Tool program at PMH and the Psychosocial Oncology Clinical Lead for South Central LHIN.



Sandy Buchman BA, MD, CCFP, FCFP

Dr. Sandy Buchman received his MD degree from McMaster University and completed his Family Medicine Residency training at the University of Toronto. He practised comprehensive Family Medicine in Mississauga for over 21 years with special interest in palliative care, HIV/AIDS and global health – including volunteer experiences in South America and Africa. Since 2005, he has been with the Temmy Latner Centre for Palliative Care at Mount Sinai Hospital in Toronto where he is the Education Lead and a physician providing home-based palliative care. He supervises Family Medicine residents at the Academic Family Practice Unit at Mount Sinai Hospital. He is also the Regional Primary Care Lead, Toronto Regional Cancer Program for Cancer Care Ontario. He currently serves as President of the College of Family Physicians of Canada. He is a Past President of the Ontario College of Family Physicians and an Assistant Professor in the Departments of Family and Community Medicine at the University of Toronto and McMaster University.

Sandy Buchman is now the President-elect for the Canadian Medical Association (taking effect August 2018).



Jocelyn Downie, BA, MA, MLitt, LLB, LLM, SJD
Professor of Law; Pierre Elliott Trudeau Foundation Fellow; University Research Professor, Faculties of Law and Medicine; Adjunct Professor, Australian Centre for Health Law Research – QUT


Confirmed Presenters:

Fredrick (Fred) D. Ashbury, PhD, MA, BA (Hons)
Editor-in-Chief, Supportive Care in Cancer
Adjunct Professor, Dalla Lana School of Public Health, University of Toronto, Ontario, Canada
Adjunct Professor, Department of Oncology, University of Calgary, Alberta, Canada
Intelligent Improvement Consultants, Inc.
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Dr. Bob Bell
Deputy Minister of Health and Long-Term Care
Province of Ontario
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Wendy Duggleby, PhD, RN, AOCN
Associate Dean of Research, Professor, Endowed Nursing Research Chair in Aging and Quality of Life, Director of Innovations in Seniors’ Care Research Unit, Nursing
University of Alberta
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Dr. Doris Howell, RN, PhD
Senior Scientist, Princess Margaret Cancer Centre
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Jennifer Jones, PhD
Senior Scientist, Princess Margaret Cancer Centre
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Dr. Danielle Kain, Palliative Care Physician at the Toronto Western Hospital and Lecturer in the Department of Family and Community Medicine with the University of Toronto

Dr. Danielle Kain is a Palliative Care Physician at the Toronto Western Hospital and a Lecturer in the Department of Family and Community Medicine with the University of Toronto. She completed her medical school at the University of Toronto and residency training at Dalhousie University, spending two years in Halifax as faculty in the Division of Palliative Medicine before returning to Toronto and the University Health Network in 2015. She practices inpatient and outpatient palliative care as a consultant at TWH, Kensington Hospice, and Kensington Gardens. She has a Master’s Degree in Medical Anthropology completing a thesis on Immigrant Experiences of Palliative Care, which continues to inform her work today, and is a member of the undergraduate education committee for the Division of Palliative Medicine, helping to design and teach curriculum. She has been involved with the MAID program at UHN since its inception.

Dr. Rinat Nissim, PhD
Cancer Clinical Research Unit (CCRU), Princess Margaret Cancer Centre
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Dr. Rinat Nissim is a staff psychologist at the Princess Margaret Cancer Centre of the University Health Network in Toronto, an assistant professor in the Department of Psychiatry at the University of Toronto, an adjunct professor in the Department of Psychology at York University, and a faculty member at the Global Institute of Psychosocial, Palliative, and End-of-Life Care (GIPPEC) of the University of Toronto. Her clinical and research work is focused on the psychosocial needs of individuals impacted by cancer, with the goal of developing evidence-based psychosocial interventions for individuals diagnosed with cancer, their family members, and their health care providers. Dr. Nissim graduated developed an expertise in integrating quantitative and qualitative approaches in order to yield meaningful answers to complex research questions in this field.

Mary Ann O’Brien, BHSc(PT), MSc, PhD
Assistant Professor, University of Toronto
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Amy Peasgood
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Dr. Gary M. Rodin, MD, FRCPC
Professor, University of Toronto
Senior Scientist, Princess Margaret Cancer Centre & Toronto General Research Institute (TGHRI)
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Dr. Michael Sherar
President and CEO
Cancer Care Ontario
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